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Heather
Thanks for adding the perspective that the sub-specialist can also sometimes be the one who does see the whole patient.
While we certainly HOPE the EHR will help in the long run, it never will accomplish much unless it is coordinated, and UNLESS REAL PEOPLE ACTUALLY READ IT. Tons of information are available but must be utilized by the provider.

I understand your desire to not have the burden of coordination in the lap of the parent or the patient, but sometimes the parent is the only one with all of the info, and certainly is the person with the most invested in the outcome.

As with most things, it is all, in the end, related to communication. If we could ensure that doctors had excellent communication skills, came into medicine with traits of compassion and empathy, behaved ethically at all times, and were ultimately associated with the outcomes their patients experienced, the world would be a better place. Unfortunately, compassion and empathy are impossible to measure, and so those docs who do it best may not be the fastest, or the cheapest, and their outcomes in measurable quantities may not look as good. They depend upon word of mouth for patients to find them. Then, if they have too many patients who require a high level of emotional investment, they may burn out.

Not sure I have the answer, but every time we add to this discussion it helps.

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