Thanks, Gretchen. Your perspective is so important. It can sometimes take years for us medical folks to learn that we have an awful lot to learn about children who are chronically ill, or who have congenital problems. YOU are the expert on YOUR child, even if we are usually the expert with regard to the medical and scientific facts.
Putting a stethoscope on a child and doing an a thorough exam are incredibly important, in learning what may be wrong.
Just this past weekend, I had a resident tell me he didn't want to wake the child up to do a neurological exam. Sometimes that is OK, but THIS CHILD WAS ADMITTED WITH AN ACUTE NEUROLOGICAL PROBLEM. That behavior brings out the mockingbird in me, really fast.